December 22, 2016

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PRECISION PATIENT RESEARCH

Your health monitoring should happen more than just four times a year
The ALS iNVOLVE App will let you track changes on a daily, weekly, monthly basis through a series of short, simple activities
MOBILE RESEARCH APP

YOU are the key to power Patient research … to unlock the understanding of the disease. Just like fitBit and others empower fitness tracking through monitoring activity we will empower Patient driven Research.

BIOMETRICS AND TELEMETRY

Measuring force, stamina, range of motion, movement analysis, gait and balance, dexterity, respiratory, voice patterns and general health. Tracking and understanding the complexities of ALS progression needs to reach beyond current subjective measurements of the past decades

MEDICATIONS AND TRIALS

Not only prescription and clinical trial participation , but a complete approach to modern and holistic treatment tracking. We believe there are many factors beneficial to those in our pALS community, there is no single answer to this complex problem

CLINICAL & SUPPORT TEAMS

Beyond pure research. There are many people involved in your well-being. Your care team is a collection of people, you can decide exactly what information and if/when you want to share it with your support members.

OUR TEAM

Our dedicated group of advisors from the top Universities, Medical Centers and Technology Companies

Clinical Neuroscience Duke

Dr. Richard Bedlack, grew up in a small town in central Connecticut. He went to college at William and Mary in Virginia, then back to Connecticut for an MD and PhD in Neuroscience at UConn. Finally, he came to Duke where he completed his Medicine Internship, Neurology Residency, Neuromuscular Fellowship, and Masters in Clinical Research Science. He is currently a tenured Associate Professor of Medicine/Neurology at Duke, Director of the Duke ALS Clinic, and Chief of Neurology at the Durham Veterans Affairs Medical Center. He has won awards for teaching and patient care, including best Neurology teacher at Duke, Health Care Hero, Strength Hope and Caring Award, America’s Best Doctor, the American Academy of Neurology Patient Advocate of the Year and the Rasmussen ALS Patient Advocate of the Year. He has received ALS research grants, participated in ALS clinical trials, published more than 60 ALS articles and recently edited a new book called ALS: A Patient Care Guide for Clinicians. He is the outgoing Chairman of the North American ALS Research Group (ALSRG) and leader of the international ALSUntangled program which utilizes social networking to investigate alternative and off label treatment options for patients with ALS.

Operations Advisor - Facebook

With a long history in software development and cloud operations including companies such as Facebook and Google. Recently an advisor on the Presidential Technology review committee.

Clinical Neuroscience UCSD

A graduate of Yale University, earned his MD from the Mayo Clinic School of Medicine, completed internship and residency in neurology at UC San Diego. Currently participates with many of the national and international neuromuscular associations

Research Advisor - DU

Associate Professor of Biological Sciences at Denver University.
2000 PhD, Pharmacology – University of Michigan – Ann Arbor, MI
2000-2005 Postdoctoral Fellow/Assistant Research Scientist – Denver Veterans Affairs Medical Center – Denver, CO

Neuro PT Advisor UCSF

Dr. Printz specializes in neurological and oncological physical therapy. Working in a variety of settings, most recently within both inpatient and outpatient services at UCSF Medical Center . A board-certified neurologic specialist by American Physical Therapy Association

Analytics Repository Advisor - IBM

Chris is one of our executive members, he lead as our Team Captain for Dallas ALS NeverSurrender. He comes to us from a rich background in Analytics, most recently an OEM Advisor at IBM Analytics guiding other software companies down the path of integrated solutions.

Cloud Ops Advisor

Kelly is passionate about building great teams and amazing products. I have deep experience in cloud, mobile, and analytics technologies, and specialized experience in leading distributed teams through periods of fast growth and rapid change. Current product manager @ SAP , previously VP Engineering & Cloud Ops @ Roambi , Fairway Technologies , onlineGURU , Hands-On Entertainment , The Active Network. Former alumni from AZ State University (ASU).

Patient Advocacy Director & pALS

Lead analyst in the feature/function design of the mobile research app .. Steph knows 1st hand what this battle is about. Diagnosed in 2013 with ALS while working for the Apple’s premiere Mobile Data analytics partner Roambi – The 1st company on the iPhone in 2008 and the iPad in 2010 offering rich interactive data intelligence.

Director - Advocacy & Marketing
Lead Writer - ALS Journeys

A graduate of Regis she joins us as our lead writer for our ALSJourney stories. An active fundraiser and advocate for ALS with an extensive background in writing and a Agile management training in hi-tech for companies such as McKesson and Sun Micro

Mobile App Advisor

Brett brings to us his expertise as Senior Architect from the vastly successful mobile analytics app company Roambi a premiere Apple development company featured on many of Apples own renowned product launch events.

Technology & Web Advisor

A dedicated technologist currently @ NextPlane , with a long career including in past health engineering for WebMD and Healtheon , other companies include Computer Associates , Cendura , SGI.

Mobile App Advisor

Veteran software engineer, Dan brings to us his many years in iOS mobile app development … and his leadership as a skilled sailor and 1st mate .. he will keep us on course and returned to safe harbors.

Web Advisor - EyeCue Labs

The brain child at EyeCue Labs , Rick brings to us many talents from product management to web design and social media integration.

Web Marketing Advisor
Fundraiser Advocate / SJC Team Capt.

Brad helped lead our ALS Never Surrender walk team in San Jose. A long career in technology including VP of WW Sales FileMaker and Apple subsidiary , previous companies include Roambi , Host Analytics , Oracle. Proud alumni University of Colorado @ Boulder.

Fundraiser Advocate - ALS Art4theCure

Covering the Rocky Mtn Region , a former 20y+ veteran of enterprise software sales, and skilled craftsman specializing in venetian plaster.

Fundraiser Advocate / Boston Team Capt.

Covering the New England Area out of Boston – Michael brings 16y+ in enterprise software sales

Fundraiser Advocate / San Diego Team Capt.

Covering Southern California , Matt brings 10y+ in enterprise software sales , currently with Apple.

Fundraiser Advocate / San Diego Team Capt.

One of our team co-captains for ALS NeverSurrender San Diego. Co-founder of Roambi a technologist and partnerships specialist. Past education includes Harvard Business School (Launching New Venture exec education program) and Art Institute of CA-San Diego Interactive Media design.