Story – Jay’s Every90mins Journey

one of our favorite comments from Jay

"Each day I seek things to lift my spirit and help me grow, because tomorrow I have another chance to be a better me. A better father. A better husband. A better human being"

We hope you find that this snapshot into 3 of Jay's posts about family and friends as inspiring as we do ....

July 25th - 

Becoming me. When I was diagnosed I had one of two choices, to fade away or to become a new person. A rebirth of sorts. Kind of like an addict coming clean, without all the cigarettes and coffee. Unlike an addict my physical condition would deteriorate as my new life began.90mins_01

Instead of getting stronger I would become feeble. Instead of taking charge I would have to be taken care of. Instead of healing I would suffer. So here I am. A new man. And tomorrow I will become a newer me. Everyday I try to seek out new meaning. I no longer worry about politics, the latest iPhone, or keeping up with the Jones'. Oddly however I do still worry about the electric bills. What I really worry about now is making sure every day is filled with love. Making sure I don't waste a chance to laugh. Reflecting every night on what I have, not what I don't. With a failing body I am forced to overcome mentally what I can't physically. Each day I seek things to lift my spirit and help me grow, because tomorrow I have another chance to be a better me. A better father. A better husband. A better human being. I have learned that if your goal in life isn't to leave this world a better place, you need to reexamine your goals. Once you do you'll be surprised how easy it is to be a better you. #Every90Minutes

 

July 2nd -

Tomorrow we leave for our annual Cape May vacation. It's bittersweet to go on the same vacation every year, same location different Dad.
90mins_06_Annual_CapeMayFamily tradition can't be the same because we have to adapt to my changing abilities. The first year of diagnosis I taught Loghan how to surf. The second year I still managed to uh, surf.h. It might not be the same, but it's still going to be awesome. #SurfsUp #Every90Minutes

 

 

 

March 2016 - 

Awesome time hanging out with this guy before the SXSW premiere of Gleason. It was a brutally raw look in to the struggle for love, life, and family while facing a terminal illness.90mins_08 I was really blown away by the honesty, it's a rare look into someone's soul (and someone's enema). The only thing stronger than Steve's desire to live is his drive to be the best father he can be. I didn't expect to laugh as much as I did, Michel was really quite funny, you too Blair. I left feeling uplifted, determined, and inspired. The entire Team Gleason crew is just incredible